Friday, January 11, 2008

Dastardly Diabetes

I think that there are so many misconceptions about diabetes out there that it just makes me want to scream. It's not that I think people who have no reason to be educated about it should just know it all, but I do wish people would f***ing stop acting like one day I sat down, ate a bunch of candy and then got a disease! That's like saying you can catch breast cancer ok?

I grew up in a family of diabetics. It genetically runs in my family on my mother's side and both her parents had it. So it's a double whammy. I didn't eat a lot of sweets growing up, not candy much at all. I don't even really like most candy. I don't like a lot of really sweet things - I just didn't have it growing up. It doesn't have anything to do with it really.

Genetics is the #1 hit against someone getting diabetes, bar none. Other factors can include weight for Type 2 diabetics, and of course put the 2 together and there ya go.

Then there's a whole other monster and that is diabetes while pregnant. You don't get it from sugar, sure it's not the most helpful diet, lol, but you don't really make yourself get it. Pregnancy is a naturally insulin inhibiting condition, which is why everyone gets checked for it, not just people who have a risk for diabetes, not just "fat" people... everyone. Pregnancy creates the risk. Insulin is a hormone, and just like all the other hormones that can go wacky while prego, insulin is one of them.

So the high and low blood sugars while pregnant are almost like mood swings for your pancreas.

Now the other myth is that diabetes means you can't have sweets and that's all it entails. Ahh that it were so easy....

Glucose (sugar) is the thing that keeps you alive. Without blood sugar levels properly managed by your body, you die. The glucose is the source of all energy in your body. All foods you eat get broken down into glucose in your blood. Carbohydrates (not just "simple sugar") are what really contribute to the energy your body needs to function. This is why Atkins is 10000% crap and sure you lose weight, but you can't live on that forever, you just can't. So what's a diabetic to do about bread, rice, pasta, chips, crackers, fruit, juice, milk, cereal, grains, etc? Not eat? Again, it's carbs that raise your blood sugar, not "sugar" only. Sugar is what's considered a fast-acting carbohydrate. And there is even a place for that (a small amount usually) in most managed diabetics' lives.

Anyway, I'm off track....

So a non-diabetic eats - the body uses insulin to get the glucose into the cells for energy. Insulin is the key that unlocks the cells to use the energy.

A diabetic eats - the key (insulin) either doesn't work, or it doesn't work well. Or the pancreas doesn't work at all thus no insulin is naturally produced by the body at all (this is usually type 1 diabetes, but can be type 2 in some cases). So all the glucose stays in the blood stream instead of getting into the cells to give the body fuel.

Also, the liver is what produces sugar ... so if you're in a jam and haven't eaten, your body usually gives you a pick-me-up courtesy of the liver so you can move on and eat soon. In a diabetic, the liver and pancreas are like speaking different languages and they don't work well with each other. So insulin can be over-produced and make your blood sugar crash, and a quick boost of sugars is needed in order to keep you alive.

Diabetes isn't just "high blood sugar" ... it's a combo of hyper and hypo glycemia depending on the moment.

So, as with many things, it's a delicate balance. And the doctor has to help a diabetes patient find trends in the glucose readings (blood sugar levels) and treat them accordingly.

Now about me - I got diagnosed with type 2 diabetes when I weighed about 300 lbs in 2003. I had gained a lot of weight from 2 medications I was on. One of which (birth control) is not really supposed to be used by people with diabetes so you should get tested before taking it because it can bring it on. My doc, back when Nick and I got married, (I dumped the doc for being an ass long long ago) never tested me and just gave me the pills. So I keep being sick all - the - time... I mean ALL THE TIME. I am surprised I never got fired from the job I have now... I was nauseous, throwing up, dizzy, confused, sometimes shaking, etc. All high and low blood sugar and never knowing it until later.

Did I eat a lot of "sugar"? No, because I knew it ran in my family, and I wanted to be smart about it. But, I was on the pill, and because I felt sick a lot, I ate lots of bread and stuff like that. Plus to be healthy I ate plenty of fruit... which is actually not good for a diabetic, but I didn't really realize back then, plus, to my knowledge, I wasn't diabetic. So I was walking around with elevated blood sugar levels most of the time and it was all unchecked.

So when I was diagnosed in 2003 I changed my diet immediately. I did not want to be on pills or insulin. I also did not want to live in denial and end up having all the high blood sugar effects later in life (neuropathy, blindness, losing limbs, stroke, high blood pressure, etc, etc). So within that first year, I lost 100 lbs. I went from a size 28 to a size 14/16 (depending on the cut of what I was wearing). I also had reversed my diabetes to non-diabetic blood sugar levels. Being young and also very devoted to changing my diet to accomodate my body's shortcomings I was receptive to that kind of treatment.

That's when I got prenant with Aidan - last 1/4 of of 2004.

Since I had changed the way my body was working so much, I even passed all my glucose tests in my pregnancy until the last 7 or 8 weeks or so. Then I had to do insulin for that time, but it wasn't so bad.

Then as soon as Aidan came out, I was golden and right back on track. Except I didn't lose the weight well and that gave me a bad setup for this pregnancy. Plus, additional pregnancies for diabetics are usually just that way.

So high blood sugar is actually what led me to think I was pregnant this time. Normally I could eat a piece of candy here and there (like a jelly bean or few in my boss' office or something) while in a meeting or whatever. But one day I remember doing that and getting REALLY sick. Whoa high blood sugar. Then the next couple of weeks my sugars were high for no reason. Prego test was positive and I got an express pass to be on insulin right away. I didn't bring on the diabetes from jelly beans, lol... my sugars went up because already being diabetic I was sensitive to the fact that I was now pregnant and the sugars just spiked as soon as I conceived.

Fast forward to now and I am at the doc weekly to monitor and adjust my insulin doses. Anything can make it change... my body can just decide it's going to work properly and make insulin (which can make me have low blood sugar because I am also injecting insulin). That can happen once, or it can be for a week or two. On the flip side, I can get a cold, which raises your blood sugar (any illness - especially a virus will) and my scale will have to go up. It's like when someone has cancer - they see what the cancer will respond to... just chemo? Or chemo and radiation? Or all that before and after surgery? etc.... That's what we are doing with me... what will the imbalance respond to and when and how, and how much, etc...

So there are way too many factors involved to sit here and tell me "oh wow, man you better get right on top of that Anna" or, "you shouldn't let your blood sugar get so low" or whatever. I have had a few people tell me that I should lay off carbohydrates... um then I take insulin when I eat and have low blood sugar - dangerously low. I don't know why people think that they know things and then judge you. They've also said some rude things about my doc... seriously, where else do you have a doc who will sit for 45 min with you going over every concern and doubt and blood sugar reading and just make sure you're ok and do their best to treat your symptoms properly? My doc is WONDERFUL and I would be so sad without her help.

I also had someone tell me it's because I'm fat. Ok, you tell that to all the skinny people who are at the doc for diabetes. Should I just go on a fad diet while pregnant? Is that the idea? I am sure that will be good for my baby.

I just don't know where people get off acting like I am some kind of moron with this. My doc keeps telling me, don't listen to anyone, you're my best patient, but it still hurts ya know?

So I was crying at the doc today because I have just been discouraged, and that low low blood sugar that sent me to the hospital was scary. The doc was so great about it and made sure I was A-OK before leaving. She also consulted with my other endocrinologist (yes I have 2 actually - one is a supervising doc I see once a month, and the other is the one I see every week). The supervising doc is like the top in his field in this region of the US and I think has also done a lot nationally. He is part of the cutting edge research for diabetes and helps so many people live better lives. Even 15 to 20 years ago diabetes treatment was a joke and all the myths ran the whole shebang. It's because of docs like this that people with diabetes who are my age and manage it from the get-go just may not die from the disease later. I am really in tail end of the first generation of people who can say that.

I am determined to stay positive and be committed to beating all that can be beaten with this.

I had to write all this down to remember that I am doing all I can, I am taking excellent care of myself. I can't let people get me down or shape how I feel about myself.

If you are still reading this, bless you, hahahaha.

Here's hoping the next time I have to bust out candy in public I don't get all the "wow that fat girl just can't wait to eat her candy can she" looks. Yah people are mean and strangers have said stuff to me in public. To all the a**holes out there who have no clue.... kiss off.

And to my friends reading this, thank you for caring and for not judging me on here. You guys rock and it's nice to know someone is out there sometimes ya know?

I thought this post would make more sense, but I don't know if it does, lol.

Off to make lunch, have a good day all!! :)

13 comments:

Kristina said...

Whew! I actually didn't read the whole thing but was skimming and didn't know that fruit wasn't good for diabetics! It has sugar so when you were saying earlier that you didn't want to eat candy but needed the sugar, I thought fruit would be a good substitute.

My Grandfather died of diabetes back in the 70's and my cousin has it too. It definitely sucks!

When is your next ultrasound?

Anna said...

Well it's not that it's "no good" it's just the time of day and the amount you have. I wish I could use it when I'm low, but it doesn't act quite fast enough to treat severe hypoglycemic levels. Has to be something like candy or orange juice.

My grandfather and grandmother both died due to complications from diabetes.

I see my OB on Monday and I should be scheduling another u/s after that. Hope I get to know what the sex of the baby is before he/she comes! :)

Anonymous said...

Hi, baby...love you. Munchly..Mom,
here..Duh..We have diabetics on both sides of our families. This is
in case some one is out there and
isn't familiar, etc..blah-blah,yada
-yada....

Ken Smith said...

Not sure why but you popped into my mind today. Sorry to hear there are enough people out there being asses to make you write this post. Your post is very informative and I read it from top to bottom as it runs in my family also. Lucky for me it hasn't hit my parents yet, just late onset for the grandparents on one side and a few other older relative (60+).

Keep up your spirits and the hell with people that judge you. People like that normally realize they are boring and/or to stupid to come up with creative things to talk about and without judging others they have nothing else to say. And I am sure you know what they say about opinions ;) .

So happy to hear you are having another baby. I hope that everything goes as smoothly as possible all things considered. My sister is due in about 6 weeks so Emma (now 2) will have a cousin to play with. She is also having a girl and the baby shower is actually today.

Must say chatting with you is the thing I miss most about leaving AA.

Ken (SuburbanHouseHunters.com)

Anna said...

Hi Ken, thanks for your comment. I definitely miss chatting with you! :) I am out on disability until around May, so I am not really in the loop as much these days, hehe.

How is Emma doing? I am sure she's just as cute as ever. Her middle name is Rose right? If we have a girl we are using Rose for the middle name as well.

Ken Smith said...

Taking that much time off of work must be driving you crazy. Sure having the little one running around helps keep you busy, but that has to be a big change going from all the adult interaction to toddler talk all day.

Emma's middle name is Rose. I actually had picked her name out, my wife handed me a list and Emma stood out to me instantly. That night as I was about to fall asleep I sat up and said the middle name should be Rose and my wife liked it. We never even had a boys name picked out even though we didn't know the sex of the baby in advance. Let's just say it was a good thing it was a girl.

My brother-in-law has decided that it will be funny to teach Emma to be a smart butt. Naturally if she is being a pain we will use Emma Rose to get her attention, he thinks it's funny to teach her to say "and sat back down". So it ends up being "Emma Rose" "and sat back down". His sense of humor is warped, but if she actually starts saying that I will kill him. She already has enough attitude.

Send me an email (ken at suburbanhousehunters dot com)with the best way to reach you, email or phone.

Angela said...

hey anna, when you get a minute, leave me a comment with your email address, i wanted to talk to you. :)

also, i'm sorry people are being assholes. keep ignoring them and concentrating on the fact that you are doing what is best for you and your baby. take care!

Anonymous said...

I think you are wrong about Atkins being 1000% crap. I've managed my Type 2 diabetes on Atkins and without meds of any kind since 1997...eating about 30 carbs a day on average. I LOVE the Atkins way of eating. It's a lifestyle for me and I don't even get tempted to eat off it. It is not difficult to do once you accept that it's eating all kinds of meats, fish, and poultry cooked in real fats like butter, as well as eating full-fat dairy and veggies that keep you healthy as a diabetic. I have loads of recipes I use for all kinds of low-carb treats when I feel the desire for a sweet taste. Eating this way for 11 years has left me with cholesterol of 148, triglycerides of 88, blood glucose of 70, and HbA1c of 5.2.

Anna said...

I too had a time where I was on 30 carbs a day avg and it was ok. I meant those who eat 0 carbs and call it "atkins". It was a big trend at my work place to do that and it was sad to see them all sluggish with no energy until they popped caffine pills.

I have very low cholesterol and triglycerides as well - it's all in moderation... I just think the extreme is where people get lost. Regardless of the label.

Sue said...

Anna,
Your post makes it sound that you feel Atkins is completely ineffective. I'm glad that is not the case.

Anna said...

Hi Sue :) Yah I was mad when I posted that, hehe. But I was actually referring to a specific set of people in my head. I didn't feel too open minded at the moment ;) I am glad you found my blog and are adding to the conversation.

I think that the key for a lot of folks is that there is no one solution or band-aid. Everyone's body is different and you have to find what helps fine tune your function. hehe too bad when you're pregnant and diabetic that can kind of go out the window. Welcome to the guessing game, hehe.

Have a great night Sue :)

Gavin said...

Have you tried controlling your blood sugar with any natural supplements like the one at http://www.vitabase.com/supplements/diabetes/bloodsugar.aspx?

Anna said...

Hi Gavin, no I haven't. Reason being when I am not pregnant I have little to no blood sugar issues at all. I have an A1C of 5.0 and don't have the highs and lows as I am not on any medication or insulin... 100% diet controlled. And about 50 lbs lighter and I don't even have diabetes anymore really. It's this particular pregnancy and the way I am sensitive to insulin. I really don't have that high of blood sugar. To me high blood sugar is 140 - 180... to most diabetics that is controlled.

As you may know lots of vitamin supplements, etc are not recommended while pregnant.